被诊断为孤独症之后最重要的10件事情
简介
声明：
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您的孩子刚刚被诊断为孤独症吗？
Has your child just been diagnosed with Autism?
那么，这里有10件重要的事情，它们将有助于您的孩子发挥他或她最大的潜力，而且有助于您管理自己的情绪和生活，无论在您面前的是美好时光，还是厄运时刻。
Then here are ten important tips that will help your child reach his or her full potential, and help you manage your own emotions and life during both the good and the bad times ahead of you.
事件1：自我教育（Tip 1: Self Education）
您是您孩子最好的辩护者。对您来说最重要的事情是定期地咨询健康专家，还有重要的是您自己要学习有关孤独症的知识，探索对您的孩子来说什么是最好的行动。这包括：了解最新的信息、与孤独症群体中的其他人交谈和与其他的孤独症儿童父母谈论您的处境，这些父母正在经受相似的经历。
You are your child’s best advocate. As much as it is important for you to regularly consult with health professionals, it is also important to educate yourself about autism and discover what the best course of action will be for your child. This includes keeping abreast of the latest information (now easier with the internet), speaking with other at autism groups, and discussing your situation with other parents of autistic children who are going through similar experiences.
事件2：寻找支持系统（Tip 2: Find a Support System）
尽管朋友和家庭是重要的，但是你会发展加入由其他孤独症儿童父母组成的群体也是有帮助的。就是分享您的体验，同时知道其它人理解您正在经历的事情也是十分重要的。你也可能会发现其他人能够提供大量的好办法，解决您正在面对的问题或其他的难题。
Though friends and family are important, you may also find it helpful to join groups that include other parents of autistic children. Simply sharing your experiences, and knowing that the other person understands just what you’re going through can be very important. You may also find that other parents can provide a surprising amount of insight into resolving problems or other issues that you may be facing.
事件3：测验与追踪（Tip 3: Testing and monitoring）
您正在改变您孩子的发展过程，并且采取相应的治疗，能够测量其中的任何变化或成功是重要的。您也应该判断出在整个发展过程中您的担心与忧虑。能够有效地做这个，您应该坚持记录您孩子的进步（以及您家庭正在取得的进步）。让您的孩子接受最初的测验，寻找出左右发展的缺陷，以确定可看到、准确的起点，这样您将能够观察到任何的改变。
It is important to be able measure any changes or successes that you are making in your child’s development and treatment. Also you should be identifying any concerns you have with development over time. To do this effectively you should keep a record of your child’s progress (as well as any progress your family is making). Have your child initially tested for all developmental deficiencies to develop a solid, definitive baseline so that you will be able to observe any changes over time.
事件4：经济支持（Tip 4: Financial Aid）
从经济上来说，孤独症对许多父母来说是一个无底洞。但是，有许多不同的选择有助于您在经济上支持你的治疗、测验、保健和其他花销巨大却必需的方法。通常最好的开始之处是您当地的孤独症支持小组，在那里其它的父母可能能够引导您走向正确的方向，向您建议在您当地您有资格享受的经济支持。
Autism can be a financially draining condition for many parents. However, there are many different options available to help you financially with your child’s treatments, tests, care, and other potentially expensive necessities. Often the best place to start is with your local autism support group, where other parents may be able to guide you in the right direction and suggest different financial options available in your area for which you may qualify.
事件5：生活方式改变（Tip 5: Lifestyle Changes）
当您的孩子最初被诊断为孤#p#分页标题#e#独症的时候，那时的感觉好像您的生活被完全颠覆了，当然也将有些生活方式改变，这些是您为了保证您的家庭快乐所必需的，也是您孤独症孩子持续健康发展所必需的。现在您知道孤独症您孩子症状的原因，您能够开始探索怎么对这些症状做出评价，并处理这些症状，而且以一种健康可行的方式。您将必须变成您孤独症孩子生活中一个十分活跃的参与者；与一个非孤独症孩子的生活相比，更加应该这样，您也将必须记住您也使一个有需要的人，有家庭，他们也需要您，您需要有意识地关心这些要求。
When your child is first diagnosed with autism, it can feel as though your life has been turned upside down and of course there will be some lifestyle changes that you will need to make to ensure your family’s happiness, and the continued healthy development of your autistic child. Now that you know that autism is the cause of your child’s symptoms, you can begin discovering how to react to and manage those symptoms in a healthy and practical way. You will need to become a very active participant in the life of your autistic child; more so than is usually necessary in the life of a nonautistic child. However, you will also need to remember that you are also a person with needs, with a family who have needs too and you need to consciously take care of these requirements.
因此，选择优先考虑的事情，制定每周的常规，学习怎样谨慎地管理您的时间是家庭生活健康的关键。
So, making priorities, creating weekly routines and learning how to carefully manage your time are key to a healthy family life.
事件6：开始在家庭里的治疗课程（Tip 6: Start an At Home Treatment Program）
在与专业工作者交谈之后，要自我学习，参加某个孤独症群体，并且与其他父母讨论，您将对应该采用哪种治疗更加清楚。一般来说，最好的孤独症治疗是那些可以在家里持续进行的，还能够把治疗方案扩展到学校，并且扩大到社区。家庭通常是治疗过程中最重要的地方，因为它对您的孩子来说是一个安全的地方，也是家庭成员居住的地方，在家里，可以进行常规活动，制定规则，这里也是他或她一般情况下度过大量时间的地方。
After speaking with specialists, educating yourself, talking to an autism group, and discussing with other parents, you will be clearer about which path you should take for treatment. Generally the best autism treatments are the ones that are continued at home and then expands outward from the treatment program into school and out into the community. Home is often the most important part of treatment practice, as it is a safe place for your child; the place where the family lives, where routines are created, rules are made and where he or she generally spends most of their time.
事件7：开始家庭之外的治疗（Tip 7: Start Therapies Outside of the Home）
您孩子的专业工作者可能推荐某些形式的治疗方法，例如ABA、言语治疗、感觉统合疗法等等。通常医疗保险会承担这些费用，或者要用现金支付。如果家庭之外的治疗和家庭里的治疗能够保持一致，那将是最好的。家庭之外的治疗通常有助于提高您孩子的社会、交往和互动技能，因为在那样的环境里，有各种不同的人，孩子可以与这些人大量的接触。
Your child’s specialist will probably recommend some form of therapy for example ABA, speech therapy, sensory integration therapy etc. Often medical insurance will cover the costs or go a long way towards to paying the bills. It is usually best if treatments outside the home are complimentary to the at home treatments. Outside the home treatments can usually help improve your child’s social, communication and interaction skills as there will be exposure to different people in that environment.
事件8：改变营养（Tip 8: Make Nutritional hanges）
“吃什么东西变成什么样”这句话对于孤独症孩子尤其正确，因为有相当多的传闻说下面的饮食能够有助于消除孤独症的症状。而且，孤独症孩子似乎更倾向于对事物敏感，例如味道、质地和气味。记录您孩子吃的食物，这能够有助于您理解敏感的类型，这些可能使您相应地调整他们的饮食。
The phrase “you are what you eat” is especially true to autistic children, as there is considerable anecdotal evidence that following certain diets can help autism symptoms. Furthermore, children with autism seem to be more prone to food sensitivities, such as the flavors, textures a#p#分页标题#e#nd smell of food. Keeping a record of the foods your child eats can help you understand the types of sensitivities they may have and allow you to adapt their diet accordingly.
事件9：保持积极的态度（Tip 9: Stay Positive）
您维持您家庭环境积极而且有活力的能力是最重要的。如果您失去了您积极的前景，您将努力争取，以保持有活力，花费时间、注意力，并做出努力，这些是最大化地发掘您孩子潜力所必需的，也是保持家庭关系健康所必需的。当您开始感觉消沉的时候，有意识地使您自己有积极的态度，不要忘记暂时停止工作。
Nothing is more important than your ability to stay positive and motivated about your family’s situation. If you lose your positive outlook, you will struggle to remain motivated and to put in the time, attention and effort required to maximize the potential of your child and develop healthy family relationships. When you start to feel down, consciously remind yourself to take a positive outlook, and don’t forget to take time out...
事件10：暂时停止工作（Tip 10: Take Time Out）
要想从容生活必须弄清楚您到底需要什么。可能要有大量的改变，以正确地护理您的孤独症孩子，但是这也并不排除这样的事实：您需要就为自己做些事情。您需要时间做自己喜欢的事情，这时候你能够重新给自己补充能量，并且重新振作起来。
Taking time for yourself is vital to making certain that your own needs are met. A great deal will be required of you in order to properly care for your autistic child, but this does not diminish the fact that there are times that you need to do things just for you. You need time to do something that you enjoy, where you can reenergize and feel refreshed.
要寻找其它的技巧和信息，最大地发掘您孩子的潜力，请登录：Autism Tree
To discover other strategies and information and maximize the potential of your child please visit Autism Tree.
